Parkinson Disease Agenda
Simplified agenda of research events on Parkinson's disease.
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February 15 - March 31, 2026 — Signant Health Hauser Diary Training Video Participants
Signant Health is seeking three people with Parkinson’s to appear in a training video demonstrating the use of the Hauser diary for clinical research. Participants may take part in full training video filming or briefly share personal experiences to support accurate symptom tracking education. Activities will be scheduled between February 15 and March 31, 2026, with compensation and travel costs covered.
February 20, 2026 — EPF Call for UNIFIED Patient Advisory Group Members
The European Patients’ Forum is recruiting representatives for the UNIFIED Patient Advisory Group, supporting a major initiative to develop patient‑centred digital health endpoints for clinical studies. Applicants will complete an online form and, if selected, participate in regular online meetings and occasional in‑person gatherings, with compensation and travel covered. The call is open until February 20, 2026.
February 13, 2026 — Parkinson’s Europe “Harvesting Joy” Story & Illustration Project
Organised by European Federation of Neurological Associations, this programme will train up to 12 patient advocates to represent neurological communities and engage with policymakers, researchers, industry, and clinicians across Europe. Participants will attend regular online meetings throughout 2026 and may join key events — including activities at the European Parliament — to help bring patient voices from concept to clinic.
February 13, 2026 — INBRAIN DBS Charging Experience Survey
INBRAIN Neuroelectronics is seeking input from people with Parkinson’s who use deep brain stimulation (DBS) to better understand their real‑life experience with charging their system. Participants are invited to complete a brief online survey available in five languages, helping identify challenges and opportunities to improve DBS charging. The survey is open until February 27, 2026 and takes around 10–15 minutes to complete.
February 13, 2026 — Bial Medication Management Insight Survey
Bial is gathering insights from people with Parkinson’s across Europe to better understand real‑world challenges in managing medication schedules. Participants are invited to complete a 15‑minute online survey available in five languages, helping improve awareness and understanding of the difficulties related to timing and adherence. The opportunity is open until March 1, 2026.
February 13, 2026 — Parklife Early Testing Opportunity
Parklife is a new digital platform created for people living with Parkinson’s, now seeking early testers to provide usability feedback. Participants will explore features such as exercise plans, symptom tracking, and wellbeing tools, then complete a short questionnaire to help refine the platform before wider release.
February 5, 2026 — IAAP Hybrid Panel on Mobile App Accessibility & Parkinson’s Experience
Hosted by International Association of Accessibility Professionals, this hybrid event invites a person living with Parkinson’s to share real-world smartphone accessibility experiences during a panel for designers and developers. The selected participant will contribute a short talk (5–6 minutes) — either online or onsite at The Wayfinding Centre in Dublin — helping professionals better understand practical challenges and inclusive solutions.
January 15, 2026 — EFNA Community Advisory Board (CAB) 2026 Applications Deadline
Organised by European Federation of Neurological Associations, this programme will train up to 12 patient advocates to represent neurological communities and engage with policymakers, researchers, industry, and clinicians across Europe. Participants will attend regular online meetings throughout 2026 and may join key events — including activities at the European Parliament — to help bring patient voices from concept to clinic.
January 12, 2026 The Trials that Matter NOW Webinar
Hosted by No Silver Bullet 4 PD and presented by Dr. Simon Stott from Cure Parkinson's, this free online session reviews the most important Parkinson’s breakthroughs of 2025 and highlights the clinical trials to watch in 2026. The webinar includes a clear, plain-English overview plus a live interactive Q&A for anyone interested in current Parkinson’s research.
December 6 2025 IDEA-FAST Digital Tools Survey on Fatigue and Sleep
A 15-minute online survey gathering patient insights on how apps, wearables, and sensors could better track fatigue and sleep disturbances in daily life. The results will guide the design of practical, privacy-respecting digital tools and biomarkers for improved care and research.
December 1 2025 Stem Cells and Parkinson’s: How Close Are We?
Parkinson’s Europe is partnering with industry to involve people living with Parkinson’s and their supporters in shaping clear, accessible patient information for a new treatment formulation (not yet approved in theA free 30-minute webinar with Professor Roger Barker reviewing the latest global progress in stem cell research for Parkinson’s and answering audience questions. It offers a concise, expert-led update on how near we may be to real therapeutic advances. EU). Selected participants will join a focus group and provide feedback to ensure the materials explain treatment initiation, side effects, and practical guidance in patient-friendly language.
November 26 2025 Co-developing Patient Materials for a New Parkinson’s Treatment
Parkinson’s Europe is partnering with industry to involve people living with Parkinson’s and their supporters in shaping clear, accessible patient information for a new treatment formulation (not yet approved in the EU). Selected participants will join a focus group and provide feedback to ensure the materials explain treatment initiation, side effects, and practical guidance in patient-friendly language.
November 22 2025 Online Clinic Study to build a cohort of people with PD
The goal of the Fox Insight is to accelerate the search for new and better Parkinson's treatments by gathering a large, diverse dataset of real-world patient experiences, genetics, and environmental factors..
November 20 2025 Parkinson Research Webinar
The Michael J. Fox Foundation will host its Third Thursdays Webinar on Parkinson’s research progress. Learn how breakthroughs in 2025 deepened understanding of the disease and advanced treatment options for those living with Parkinson’s. Register and join live at michaeljfox.org to ask your questions directly.
November 13 2025 Parkinson Research Webinar
Parkinson’s Ireland hosts a free webinar chaired by Dr Emma O’Shea, featuring leading experts on Parkinson’s research. Register online via Parkinson’s Ireland and join live at 19:00 GMT / 20:00 CET.
November 3rd 2025 — Medical Device Supply Chain Survey
The European Commission invites patients, healthcare professionals, authorities, and industry to share insights on medical device shortages and supply chain resilience. This online survey will inform strategies to strengthen availability and reduce dependency on third countries.
November 2025 Parkinson’s Focus Group
Britannia Pharmaceuticals seeks six people with Parkinson’s and/or caregivers to share experiences with intrajejunal pump therapy. Participants will join an online discussion to inform a report and expert opinion on this treatment option.
October 19 2025 — EMA Patient Experience Data Survey
The European Medicines Agency invites patients, carers, and organisations to share insights on patient experience data across therapeutic areas. This short online survey (10–15 minutes) will help strengthen how PED is used within the EEA.
October 13 2025 — EMA Patient Experience Data (PED) Survey
The European Medicines Agency (EMA) has launched a survey to understand how patient experience data (PED) is used across different therapeutic areas. Open until 19 October 2025.
October 6 2025 — EMA Survey on AI research
EMA is conducting a survey to identify AI research priorities in medicine development. Open until 17 October 2025.
September 29 2025 Welcome to the Workplace
Parkinson's Europe launches 'Welcome to the Workplace' campaign with a multilingual survey open until 12 October 2025.
September 26 2025 Parlons Recherche
France Parkinson hosts Parlons Recherche conferences on 11 October (Nantes) and 18 October (Paris), with online access in French and English.
September 9 2025 Questionnaire and interviews - Parkinson Pharos
Parkinson Pharos seeks input via questionnaire and interviews to shape a new app for different stages of Parkinson's disease.
September 4 2025 Research Committee - Cure Parkinson
Cure Parkinson's invites applications for its Research Committee. Open to experts and people with Parkinson's in Europe and the UK. Deadline: 29 September 2025
August 17 2025 World Parkinson Congress in Phoenix, USA (May 2026)
World Parkinson Coalition opens calls for the 7th World Parkinson Congress in Phoenix, USA (May 2026), including grants, submissions, and creative initiatives.